Tag Archives: ADHD

A complete lack of communication – Medication Issue

Complete lack of communication – Medication Issue

How hard is it?  David has six prescriptions.  Two medications are available over the counter – the others aren’t.  communication

Since the staff at the juvenile detention center where David is currently being housed had an issue with his originally supplied medication, we supplied them with all new prescriptions from the pharmacy and brand new bottles of the over the counter medications, both were sealed.  Included were two prescriptions for the over the counter medication that the pharmacy gave us on behalf of David’s psychiatrist.

Yet.

They are still claiming an issue with his medication.  So he isn’t getting all of his medication.

One would think that the nurse would check with David’s doctor.  With me.  Or the doctor who prescribed the medication.  With the advocate. With David’s lawyer.  Or the Care Coordinator. With Juvenile Court.  or maybe the Developmental Disabilities Program Manager.

So many people that they could have taken a few minutes and called to clarify ANY medication issues.

And they didn’t.

Communication.

So knowing my son.  He isn’t getting the sleep he should because of the way his body is.  I don’t care if your body will let you stay awake for 48 to 72 hours without any issue.  You need decent REM sleep like any other person.  Without it, they are setting him up for a huge failure.

If it was safe for the rest of us to bring him home, I would.

I promise these people.  They have never seen a child like my son come through their doors.  Why do I say that?  Because we have been told that by two other facilities systems that he has been in.  Because I know my son.  I know at least some of what he is capable of.

I fear that which I don’t know about him.  How easy it would be for him to have a complete psychotic break and seriously injure someone?  These are the things I don’t know.  and it makes me afraid for him.  Very afraid of where his life goes from here.  Especially without his medication.

Communication is hugely important in any child’s life. When dealing a child with serious mental illness, it is even more so.

 

The unfinished quilt top: unraveling threads

Unfinished quilt tops. Loose fabric, pieced together.  seams resewn to strengthen the final product.  adjustments, another persons eye to style and color.  A work in progress.  I strive to save the lovingly hand stitched aspect of the quilt top while ensuring it won’t fall apart upon the first washing.Life lessons.  Spools of thread. Simple things… Continue Reading

Risk Assessment – Hope, Dreams and Fear

What do you do when you need to balance the mental illness of one child against the wellness of a whole family? Do you allow the mentally ill and potentially very violent child to return home? Or do you push for another residential placement? Continue Reading

Mr School Van Driver

Good morning my friends.  Hope this note finds you well. Yesterday was an excellent day. This morning, David was in full on mode.  Jumping from topic to topic so quickly that we couldn’t keep up.  In the course of 30 minutes, I bet he talked about 50 different things.  When he is like this there… Continue Reading

news of the day. June 11, 2015

David is being really good today.  Following me like my shadow. I appreciate that he is trying.  As I survey my garage, I am discovering just what all has been lost because of David’s actions. Weedeater. Networking tools for installing data networks. Gasoline Screws by the box. It isn’t much, and I am sure that… Continue Reading

So Far, So Good, Now …

It is too early to tell if all of my worry from the last two weeks was for not. However, so far so good.  It is an adjustment for sure, but no less an adjustment for him as the rest of the family. I am used to having the house to myself all day long,… Continue Reading

I now pronounce sentence. 72 hours and a prayer

The appeal to Medicaid to further fund services has been denied. As a result, I will be picking up David from the facility on Monday.  We then come home to begin a new chapter in our lives as a family. We had an IEP meeting for him this morning. Short term he will be homebound… Continue Reading