Tag Archives: autism support

So Far, So Good, Now …

It is too early to tell if all of my worry from the last two weeks was for not.

However, so far so good.  It is an adjustment for sure, but no less an adjustment for him as the rest of the family.

I am used to having the house to myself all day long, and now I have this teenager running around.

Today we had a second IEP meeting about him.  On Monday he will start half days in a day program in a nearby city.  School will transport him to the facility, I will pick him up.

This is two fold, one, they can provide the class size and supports that he needs.  In the afternoon, I can work with therapists for various appointments.  We won’t be able to recreate every aspect of residential care, but we ought to be able to create some of it.

One thing I have to remind myself, is that he is a 13 year old boy.

Annual Christmas Letter and Appeal

Greetings friends and readers. It is with all the joy in my heart that I wish each of you a joyful holiday.  One filled with acceptance of the differences we see in others.  One where our children know how much love we feel in our hearts for them. It is tradition in our home to… Continue Reading

I am homesick – he says

Is it ok for me to be tired of all of this? I’ll be more positive next week. They evidently think that David’s behaviors/anger has nothing to do with his bipolar. They moved him upstairs, he has himself convinced that it is because one of his peers was pounding on the wall. He claims that… Continue Reading

Off Close Watch

David is off close watch. They moved him off the lower level of the residence, and to the main floor.  This allows them to keep a closer eye on him. I miss the little guy. I advised staff that we need to ensure that we are looking at his meds.  While not a cure, they… Continue Reading

thoughts for today, tomorrow, the future

My goal is to raise awareness. Please, if you read my blog, share it with others. Our beautiful son is not the only child who is struggling with mental illness. There are others out there. So please, share my blog with others that we might work together to raise awareness. Awareness begins with one voice and builds steam from there. I know quite a few parents who have been fighting for their children for a long time, far longer than we have been fighting for Marc. Voice’s get tired. People get tired. So let’s rally the troops.

Mental illness encompasses a broad range of things. Each mental illness is important.

Thank you again for your support. It means the world to my family. To me. Continue Reading

At a loss, with tears rolling.

Dad’s are supposed to be able to fix things. I can’t fix this. I can’t undo the damage caused by a selfish woman who did not think of her unborn child when she proceeded to get herself loaded up on drugs. Continue Reading

update – positive news

Staff called tonight. David was in a good place to talk to me tonight.  When he is manic, it just isn’t a good idea.   David addressed his concerns. Doesn’t want to be there for another 6 months to a year. Thinks that he is being lied to. Doesn’t understand why we aren’t coming out… Continue Reading

An update on the Crisis Mode.

It is midnight here at the home.  Just got a call from staff. David was taken off “close watch” at 2 pm this afternoon.  What this means is that they have loosened his keeper.  He doesn’t have someone practically attached to him.  And while he will be monitored frequently, he won’t have someone sitting in… Continue Reading

Home sweet home, again.

1176 miles. From home, to the residential facility and back again.  4 days. The thing about driving.  It gives a person a lot of time to think.  Ruminations about fatherhood, about things that a person might have done differently for David. I keep coming back to one inalienable truth. We did what we had to do.  Not… Continue Reading

Pass day 2.

Well, pass number 2 is in the books.  What can I say? Another success. Since David has school and therapy during the day, I spent the day shopping for clothes for him.  What 13 year old boy doesn’t need new pants on a regular basis.  Although at 4’11” and 79 pounds, it will be a… Continue Reading