Tag Archives: Conditions and Diseases

A complete lack of communication – Medication Issue

Complete lack of communication – Medication Issue

How hard is it?  David has six prescriptions.  Two medications are available over the counter – the others aren’t.  communication

Since the staff at the juvenile detention center where David is currently being housed had an issue with his originally supplied medication, we supplied them with all new prescriptions from the pharmacy and brand new bottles of the over the counter medications, both were sealed.  Included were two prescriptions for the over the counter medication that the pharmacy gave us on behalf of David’s psychiatrist.

Yet.

They are still claiming an issue with his medication.  So he isn’t getting all of his medication.

One would think that the nurse would check with David’s doctor.  With me.  Or the doctor who prescribed the medication.  With the advocate. With David’s lawyer.  Or the Care Coordinator. With Juvenile Court.  or maybe the Developmental Disabilities Program Manager.

So many people that they could have taken a few minutes and called to clarify ANY medication issues.

And they didn’t.

Communication.

So knowing my son.  He isn’t getting the sleep he should because of the way his body is.  I don’t care if your body will let you stay awake for 48 to 72 hours without any issue.  You need decent REM sleep like any other person.  Without it, they are setting him up for a huge failure.

If it was safe for the rest of us to bring him home, I would.

I promise these people.  They have never seen a child like my son come through their doors.  Why do I say that?  Because we have been told that by two other facilities systems that he has been in.  Because I know my son.  I know at least some of what he is capable of.

I fear that which I don’t know about him.  How easy it would be for him to have a complete psychotic break and seriously injure someone?  These are the things I don’t know.  and it makes me afraid for him.  Very afraid of where his life goes from here.  Especially without his medication.

Communication is hugely important in any child’s life. When dealing a child with serious mental illness, it is even more so.

 

Off Close Watch

David is off close watch. They moved him off the lower level of the residence, and to the main floor.  This allows them to keep a closer eye on him. I miss the little guy. I advised staff that we need to ensure that we are looking at his meds.  While not a cure, they… Continue Reading

thoughts for today, tomorrow, the future

My goal is to raise awareness. Please, if you read my blog, share it with others. Our beautiful son is not the only child who is struggling with mental illness. There are others out there. So please, share my blog with others that we might work together to raise awareness. Awareness begins with one voice and builds steam from there. I know quite a few parents who have been fighting for their children for a long time, far longer than we have been fighting for Marc. Voice’s get tired. People get tired. So let’s rally the troops.

Mental illness encompasses a broad range of things. Each mental illness is important.

Thank you again for your support. It means the world to my family. To me. Continue Reading

travelling to see David, a sadness.

We live on the great plains of our country.  Northern Great Plains.  we are about 550 miles from the residential facility where David lives. I wish we had train service between here and there.  The nearest depot to his residence is like 5 hours. the last Amtrak went into Billings, MT in 1979.  With the… Continue Reading

An update on David’s recent crisis

David is stable.  He is still under the suicide watch and will continue to be for the next couple of days.  Tomorrow he sees the psych team, and Tuesday we meet with the therapist. Because of the number of staff that need to work with David at any one point, they didn’t have enough in… Continue Reading

A threat of suicide and a prayer

This morning, I received a phone call from staff.  David is in crisis. It is more than that.  Yesterday two young men got into a fight or something, and David decided to get involved.  As a result he lost all privileges.  Has to spend 20 minutes of every half hour with staff. They usually start… Continue Reading

David’s Honesty About Travel

Honesty is often times a misunderstood topic when it comes to David. Is he inherently honest?  Yes, I think so.  I think that most people are.  At least that is what I believe. On the other hand.  Do I believe everything David tells me? No.  I think not, and neither should you. Let me give… Continue Reading

David in Crisis Part 2

David was in crisis. His manic moods are nothing new to us.  They are new to the facility where he lives now. Today, among other things, they called and talked about an allegation that David made against a staff. David has learned that he can file grievances and complaints against the staff at the facility. … Continue Reading

First contact and meeting at new facility

We had our first conference call with the team from the new facility yesterday.  A full team is involved.  Care team, medical team, education, and equally important, the family. Once we got through the initial introductions, focus was directly on medication.  Like mom and I, they believe that the least amount of medication necessary to… Continue Reading

David is in the new facility.

We left home this morning in near blizzard conditions.  What should have been a 45 minute drive took more than an hour.  Loaded David’s things, consolidated the boxes from 7 to 4.  And then hit the road. David was very well behaved during the trip to the new facility.  468 miles. The new facility seems… Continue Reading