Tag Archives: Fibromyalgia

David’s Honesty About Travel

Honesty is often times a misunderstood topic when it comes to David.

Is he inherently honest?  Yes, I think so.  I think that most people are.  At least that is what I believe.

On the other hand.  Do I believe everything David tells me?

No.  I think not, and neither should you.

Let me give you an example.

Let’s us say that David and I are having a conversation about the weather.  Just for example.

David:  How you doing?

Me: I am ok.  We are having a blizzard.

David: I’ll trade places with you if you want…

Me:  No David, you need to work your program, but I hope to visit you for a couple of hours soon.  Hopefully later next month.

David:  Did you know they have guest housing here?

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and that would be the sum total of our conversation.

Later, I would find out that David is telling everyone that I am coming to stay for four or five days.

Our visits to the facility hinge on a number of factors, most important is how healthy I am at that point in time.  The other is travel.  We can’t afford to be driving a thousand miles a month plus miscellaneous expenses such as food.  I wish we could.  The First National Bank of Dad is closed.  No way around that.   If I can hitch a ride with a friend going in that direction, I will gladly do so.  With luck, I will be able to make frequent visits to his facility.

However, at least until summer, it would be just me making the trip, not the whole family.

So, bottom line, don’t believe everything David tells you.  He can tell some whoppers.

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Emotionally drained

In less than twelve hours, mom and I will pick David up from his current residential facility. We will then drive 462 miles more or less, and admit him to his new facility. While I have to believe that this is in his best interest, I also feel that in some small way we are… Continue Reading

Don’t second guess our decision about our son

We don’t need you to second guess our decisions about our sons care. We know his conditions better than just about anyone, including his medical team. Until you have lived in our home with him, experienced his violent temper, and manic behaviors, you can’t tell us that we are wrong to embark on the path… Continue Reading

Peripheral Neuropathy… this is new…

As a parent of children with Special Health Care needs, I am no stranger to doctor’s and their quirks or quirky diagnoses. Today, I was diagnosed with Peripheral Neuropathy.    Basically the nerves in my body don’t function like they should. What does that mean? I have constant pain. I also have muscle weakness that sometimes… Continue Reading

all in due time

With David out of the house 99.9 percent of the time, the other kids are coming out of their shells. I think one of the hardest things is having to call upstairs two or three or four times to get their attention.  Most of that is because they are teenagers and have teenage things on… Continue Reading

it’s 4pm, have you had your tantrum yet today?

David will be home from school in 15 minutes. Last night we discovered him upstairs.  In that section of the house that he is not allowed to be in.  Today, we discovered that big sister’s iPod is missing again. David will need to take off his clothes and put on pajamas right away when he… Continue Reading

Master of Deception

David was in safe bed last week.  One of his assignments was to write a detailed listing all of his hiding places. I don’t believe by any means that it is a comprehensive list, but it gives us a good place to start. It will also give us ideas of where else to look. So… Continue Reading

The truth is

It has been 24 hours since I left David in the safe bed. I am trying to adjust to sleeping, but don’t want to make too much change, as he will be back home on Saturday. The truth is, I miss him.  I don’t miss the tantrums.  I miss the good David that comes home… Continue Reading

is it relief or something else

David is in a “safe bed” for the next four days.  No t.v. no computer, no interaction with peers.  Just him, four walls, a bed, a desk and a chair.  He will have daily homework, written assignments, that he must complete. Why? David has been having many hour long tantrums and outbursts the last couple… Continue Reading