Tag Archives: frustration

A complete lack of communication – Medication Issue

Complete lack of communication – Medication Issue

How hard is it?  David has six prescriptions.  Two medications are available over the counter – the others aren’t.  communication

Since the staff at the juvenile detention center where David is currently being housed had an issue with his originally supplied medication, we supplied them with all new prescriptions from the pharmacy and brand new bottles of the over the counter medications, both were sealed.  Included were two prescriptions for the over the counter medication that the pharmacy gave us on behalf of David’s psychiatrist.

Yet.

They are still claiming an issue with his medication.  So he isn’t getting all of his medication.

One would think that the nurse would check with David’s doctor.  With me.  Or the doctor who prescribed the medication.  With the advocate. With David’s lawyer.  Or the Care Coordinator. With Juvenile Court.  or maybe the Developmental Disabilities Program Manager.

So many people that they could have taken a few minutes and called to clarify ANY medication issues.

And they didn’t.

Communication.

So knowing my son.  He isn’t getting the sleep he should because of the way his body is.  I don’t care if your body will let you stay awake for 48 to 72 hours without any issue.  You need decent REM sleep like any other person.  Without it, they are setting him up for a huge failure.

If it was safe for the rest of us to bring him home, I would.

I promise these people.  They have never seen a child like my son come through their doors.  Why do I say that?  Because we have been told that by two other facilities systems that he has been in.  Because I know my son.  I know at least some of what he is capable of.

I fear that which I don’t know about him.  How easy it would be for him to have a complete psychotic break and seriously injure someone?  These are the things I don’t know.  and it makes me afraid for him.  Very afraid of where his life goes from here.  Especially without his medication.

Communication is hugely important in any child’s life. When dealing a child with serious mental illness, it is even more so.

 

Less than 24 hours and a wake up

Less than 24 hours and a wake up from now, barring some intervention, David will be home. He will come home from a supported environment where he has constant supervision, consistent support, and success in school, to home. Home where we can’t recreate the level of support he has now. Where we will live on… Continue Reading

Not to sound pushy – we will discharge if…

“Not to sound pushy.. we will discharge if…” Yes, that’s the opening salvo in a conversation with staff. “If you don’t take David home on an overnight pass either this weekend, or next, we will discharge him.” I argued.  And will continue to argue. In the meeting prior to this one, that included David, I… Continue Reading

Round Two of the Battle for Services

We are repeatedly told that we need to do more. So we are doing more.  We have added intensive in home therapy, individual therapy, and have ongoing mentor support (staff).  We also are visiting doctors and psychiatrists. I spend my days either on the road to the cities, or at home chasing down this report… Continue Reading

Frustrated with Doctors

His psychiatrist wrote up some fictional patient notes.  Not sure where I was when the things she wrote happened in our appointment happened. They do this with impunity.  How can they, in good conscience, tell the parent and child one thing, then write something else in the notes? It’s semantics I know, but here are… Continue Reading

Can I say that I am a little bit angry?

We picked up David today from the mental health unit. We were given two new prescriptions for him. We traveled home.  I dropped the scripts off at the local pharmacy. I asked to be notified if the insurance company gives them any trouble filling the prescription. An hour later the pharmacy called.  Insurance needs preauthorization. … Continue Reading

I am homesick – he says

Is it ok for me to be tired of all of this? I’ll be more positive next week. They evidently think that David’s behaviors/anger has nothing to do with his bipolar. They moved him upstairs, he has himself convinced that it is because one of his peers was pounding on the wall. He claims that… Continue Reading

Off Close Watch

David is off close watch. They moved him off the lower level of the residence, and to the main floor.  This allows them to keep a closer eye on him. I miss the little guy. I advised staff that we need to ensure that we are looking at his meds.  While not a cure, they… Continue Reading

thoughts for today, tomorrow, the future

My goal is to raise awareness. Please, if you read my blog, share it with others. Our beautiful son is not the only child who is struggling with mental illness. There are others out there. So please, share my blog with others that we might work together to raise awareness. Awareness begins with one voice and builds steam from there. I know quite a few parents who have been fighting for their children for a long time, far longer than we have been fighting for Marc. Voice’s get tired. People get tired. So let’s rally the troops.

Mental illness encompasses a broad range of things. Each mental illness is important.

Thank you again for your support. It means the world to my family. To me. Continue Reading